Resources

Organizations

There are several organizations that provide support and advocacy for rare therapies.

Support Organizations:

Government Organizations:

Father and daughter hugging

Clinical Team Video Insights

Our specialty care team—including nurses, patient care advocates, dietitians, and pharmacists—works together to support people living with rare conditions. Watch to learn how personalized, compassionate care helps guide patients every step of the way.

A patient’s story, told by Cynthia, a Rare TRC nurse

A patient’s story, told by Jill, a Rare TRC dietitian

A patient’s story, told by Shaundra, a Rare TRC patient care advocate

A patient’s story, told by Keri, a Rare TRC pharmacist